Resources
Thoracic Aortic Aneurysm and Dissection
Please visit the following websites for more information regarding thoracic aortic aneurysm and dissection:
John Ritter Research Program in Aortic and Vascular Diseases:
https://www.johnritterresearchprogram.org
email:
jrrp.research@uth.tmc.edu
International Registry of Acute Aortic Dissection (IRAD): www.iradonline.org
Cleveland Clinic Heart and Vascular Center: Thoracic Aortic Aneurysm
Stanford Hospital & Clinics: What is a thoracic aortic aneurysm?
National Heart, Blood, and Lung Institute: What Is an Aneurysm?
Methodist Health System: Aortic Dissection at Any Age: The Tyler Kahle Story
Guidelines for the Diagnosis and Management of Patients With Thoracic Aortic
Disease: PDF or journal article (Journal of the American College of Cardiology)
Genetic Syndromes
For more information about the genetic connective tissue disorders that cause thoracic aortic aneurysm and dissection, please visit the following websites:
Marfan syndrome: National Marfan Foundation
Loeys-Dietz syndrome: Loeys-Dietz Syndrome Foundation
Ehlers-Danlos syndrome, vascular type:
Turner syndrome: Turner Syndrome Society of the United States
Guidelines for the Diagnosis and Management of Patients With Thoracic Aortic Disease: PDF or journal article (Journal of the American College of Cardiology)
Clinical Genetics Resources
To find a medical geneticist or genetic counselor, please visit the following websites:
American College of Medical Genetics and Genomics: Find Genetic Services
National Society of Genetic Counselors: www.nsgc.org
