Resources

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Thoracic Aortic Aneurysm and Dissection

Please visit the following websites for more information regarding thoracic aortic aneurysm and dissection:

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John Ritter Research Program in Aortic and Vascular Diseases:
www.JohnRitterResearchProgram.org

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Thoracic Aortic Disease Coalition (TAD Co):  www.tadcoalition.org

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International Registry of Acute Aortic Dissection (IRAD):  www.iradonline.org

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Cleveland Clinic Heart and Vascular Center: Thoracic Aortic Aneurysm

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Stanford Hospital & Clinics: What is a thoracic aortic aneurysm?

 

National Heart, Blood, and Lung Institute: What Is an Aneurysm?

 

Methodist Health System: Aortic Dissection at Any Age: The Tyler Kahle Story

 

Guidelines for the Diagnosis and Management of Patients With Thoracic Aortic

Disease:  PDF or journal article (Journal of the American College of Cardiology)

 

Genetic Syndromes

For more information about the genetic connective tissue disorders that cause thoracic aortic aneurysm and dissection, please visit the following websites:

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Marfan syndrome:  National Marfan Foundation

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Loeys-Dietz syndrome:  Loeys-Dietz Syndrome Foundation

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Ehlers-Danlos syndrome, vascular type:  Ehlers-Danlos National Foundation; EDS Network CARES Foundation

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Turner syndrome:  Turner Syndrome Society of the United States

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Thoracic Aortic Disease Coalition (TAD Co):  www.tadcoalition.org/tad/4348/Who-is-at-Risk?

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Guidelines for the Diagnosis and Management of Patients With Thoracic Aortic Disease:  PDF or journal article (Journal of the American College of Cardiology)

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Clinical Genetics Resources

To find a medical geneticist or genetic counselor, please visit the following websites:

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American College of Medical Genetics and Genomics:  Find Genetic Services

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National Society of Genetic Counselors:  www.nsgc.org